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$2.2 Mn For A Drug is Ridiculous, But it’s True
My friend’s daughter is suffering from a rare genetic disorder, and she needs your help.
I recently received some heart-breaking news about a friend’s daughter. Her name is Diya. Recently, she got diagnosed with Spinal Muscular Atrophy (SMA) Type 2. The best treatment for Diya’s condition is a drug called ZOLGENSMA which also happens to be the costliest drug in the world at USD 2.2 Million. She needs to receive this treatment before she turns 2.
When my friend messaged in the College WhatsApp group, I read twice or thrice to really confirm he was talking about his own daughter, and it’s not a forward. It wasn’t. My heart sank. It took some time to process the information. My husband and I immediately called him to understand the gravity of the problem and how we could support them.
A couple of months ago, the parents (Nandgopal and Bhavana) noticed Diya isn’t moving as much as other infants her age. She wasn’t able to lift or crawl as such.
So they consulted a pediatrician, and that’s when they understood that something isn’t right. The doctor suggested to get her tested for SMA.
Unfortunately, the result was positive.
